Speaking of Phoenix, it is so HOT here. Everyone told us that we would "climatize" our second summer and that was not the case. So we did what any sane person would do and bought season passes to the local water park. We spent our summer chasing the little monster around and it was actually a lot of fun. We love that little monster.
Now that our scorching summer is over we are LOVING this 85 degree fall weather. The husband is back in school full time. I decided to add a heavy load of college classes to my full time job of cooking, cleaning, chauffeuring to school and dance, play dates at the park, the new work-out group, loving on these beautiful kids of mine, and crumping! Just kidding, not really though. I may or may not try crumping during regular dance parties with the family. Anyways, I guess I should mention that I am a Licensed Practical Nurse, and have been for nearly 6 years. The classes are to help me finally achieve my goal of becoming a Registered Nurse.
I mentioned before that this is our second summer in Phoenix. Before that, we were in Utah which is our "home". Utah is not only where we grew up, fell in love and started our family, but also where most of our extended family is. Now, those of you that do know me, know that I have a super cool brother named Dayne.
(For those of you who already know his story, Im sorry, but I'll make it quick) Dayne was born like any other baby, developed like any other baby/toddler, and met all his milestones until he was three I think. When he was three he broke his arm at the park. My parents took him to the ER only to find out that not only was the arm broken, but that he had about 10-15 other broken bones, some that were healing. After about a million doctor appointments Dayne was diagnosed with Spinabifida Occulta and Osteogenesis Imperfecta. When he was five, just after he was the ring bearer for my wedding Dayne lost his ability to bear weight on his legs.
After TONS of broken bones, surgeries, beginning phases of respiratory failure, tracheostomy, and a permanent wheelchair...Dayne was diagnosed with yet another disease. "Disappearing bone disease". It is exactly as it sounds. I think that I failed to mention until now that through all of this Dayne has been nothing short of amazing. He never thinks about himself. I remember when he was ten, he went to the mall with me to get my little girls ears pierced. Both of the girls cried, of course. Well, Dayne was so sad. He looked at me and asked, "Why would you hurt them for no reason?" He was not being rude, just concerned for the girls. Anyway, Dayne is at a point in the progression of his three diseases where the doctors in Utah cannot help him. He will be leaving on the 22nd of this month to travel to Baltimore to Johns Hopkins to have some life changing surgeries and medical care that possibly will allow him to stand up again. Keep in mind he hasn't been able to stand up for 11 years.
Alright, after all of these introductions and explanations, I am able to explain why I have set up the blog and why it has the name it does. Reason one is that I would like to raise awareness for Dayne's situation. And really hopefully if I am successful I can help raise awareness and financial support for other people who are suffering in other ways. So, we decided we would do a little online shop with personalized necklaces, and other featured items and donate a portion of all the profit to someone in need, starting with my brother Dayne.
As for the name. Have you ever looked at someone you love and been 100% happy in that moment.
I mean truly content with your life. Well I have. About a million times and it never gets old and I never get used to it. For example, there are several moments in my day when I feel this way (don't get me wrong there are as many moments where I want to pull my hair out), but the moment my husband gets home from school after a long day, or when I take the little guy upstairs for a nap and we go through his fun little routine, or when I hug the kids good night and they tell me they love me. These are those sweet loving moments that inspire me.
So if you are able, buy one of our necklaces and help us make a difference.
Thank you from the bottom of our hearts.
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