Update on Dayne

So I have been asking Ed for an update but unfortunately he is not ready at this point to do any updating.  So we will give him his time.  But while we are waiting I will personally thank everyone for the generosity shown.  There are truly good people in the world.  The one thing that Ed has mentioned to me while discussing the amounts of donations or as we talk about the jewelry purchased on his behalf he says that "this is good enough news that for just a moment he is able to forget about his diagnosis and find a moment of happiness." So thank you all for that.  It is truly overwhelming to witness first hand the love that has been shown here.

Now,  While we wait for Ed I think an update on the Dayner-Man is in order!  First lets start with pictures.

So as mentioned before, the surgery was a success and the doctor was able to take the rod in the tibia and replace it and do some bone grafting.  It is in place and appears to be stable. And his legs are nearly straight! Yay!  The bad news is that my mom had noticed in recovery that Dayne did not have a incision on his hip.  This was so discouraging for my mom because the incision on the hip meant that the surgeon would have taken a piece of Daynes bone out to be tested that way they could find a way to hopefully "type" his condition, and find further treatment for him.  When my mother asked the surgeon why there was not an incision on his hip indicating that the bone biopsy was done the doctor simply said "I did my part and it was succssful".  Then walked away.  

When Dayne was little he was told that he had Osteogenesis Imperfecta type IV as well as Spina bifida Occulta. Now over time Dayne has kind of fallen out of the category for the Osteogenesis Imperfecta type four.  He still has the Spina bifida occulta.  As of now there are no treatment options for Dayne.  Can you believe that?  Nothing?  

 So this day was a particularly hard day for Dayne.  Ya know, growing up Dayne has never said "Why me?", or "Why did this happen to me?" or even "Why can't I be like everyone else?".  So we all kinda just kept quiet and thought that maybe Dayne didn't really realize just how different he was from us all. Well boy were we wrong.  Today was Daynes breaking point.  He cried and cried for hours before leaving the hospital.  He was tired and in  more pain that you could ever imagine and he said that he was so sad to be him.  He never wished his situation upon anyone else, but he said that he wished that he could walk.  That he could have a girlfriend and be like everyone else.  Drive a car, go to the movies with friends, whatever, well right now he just can't.  He is so weak and so fragile and requires my moms help for everything.  He told her that the reason he plays video games all day long is because it is the only way to get away from his "head".  To get away from his "mind".  He told my mom that the thoughts that go through his mind are so terribly depressing that he just has to keep himself busy so that he isn't miserable.  This is the night that my mom did exactly what a loving mom should do and she snuggled up to her baby and kept him comfortable through the night.

 Dayne has had a hard time making friends because he is different from everyone else.  I was under the impression that kids were more kind than they are, but I was wrong.  When I took Dayen to get his yearbook signed last year I spent most of the time crying because there were maybe only a handful of people that talked to him.  It broke my heart.  Anyway, this kid has been through so much.  I was going through pics last night and ran into this one that nearly killed me ...

We almost lost him during this surgery.  

Here are a couple more current pics from the surgery this time.

Looking so much better!  

And you are welcome!  A video of the Dayner-Man dancing to his music! Talk about making the very best of a bad situation.  Now I talked to Dayne the other Day and I posted it on here before.  Dayne has this wish to meet SHAY CARL.  So SHAY CARL, wherever you are, for the love...would you please send this ever deserving boy a message or something! It would make his life!  Or if anyone reading this is able to get in touch with Shay Carl from YouTube, please, please help us out.  This is his wish.  

Now my quick little message to my brother, Dayne, I miss you so much and I am so proud of you for being such a champ through all of this.  It is all painful now, but in the end it will all be worth it.  I am so blessed and privileged to be your sister.  

Oh, and a favor to anyone who reads this...Dayne could really used some encouragement.  His spirits have really been down.  If you have a little message you could send to him to give him some encouragement it would mean the world to not only him, but to me as well.  Please send Dayne a message to hellosweetluv@gmail.com and I will get them all to him.  I am hoping to overwhelm him in the best of ways with all of your messages.  How cool would it be to receive some letters from some of the countries that have been reading our posts...Canada, Nigeria, Japan, South Korea, Nepal, Australia, Russia, France, Germany, United Kingdom, Malaysia, Mexico, Ireland, Israel and Granada,  Holy moly that would make anyones day and give them a little more fight to carry on with their life long battle of pain.  

Love to you all and Thanks for caring enough to read about my baby brother and to keep him in your thoughts and prayers.  Please, please send him a message at hellosweetluv@gmail.com

Daynes Sister, 

Brittani